Alice Domurat Dreger, “What to Expect When You Have the Child You Weren’t Expecting,” in Surgically Shaping Children: Technology, Ethics, and the Pursuit of Normality, ed. by Erik Parens [Baltimore: Johns Hopkins University Press, 2006]: 253-266.
This is meant to be a parents’ guide to the experience of considering “normalizing” surgeries for children born with things like craniofacial anomalies, disorders of sex development, conjoinment, and achondroplasia. Several pediatric specialists have told me this ought to be printed up as a brochure and handed out at children’s hospitals. That’s a nice thought, but I think the rest of the book is also really great.